For families and friends that know someone with Cortical Visual Impairment, CVI Facebook pages can be an invaluable resource. There are many companies and support groups that have created pages on which they share important information. Pages can range from simple DIY ideas for your child with CVI, to educational and instructional resources to treat the condition.
Here are 7 great CVI pages to follow and why we think they are helpful.
– CVI Neuroplasticity Research Group
The CVI Neuroplasticity Research Group is a page focused on neuroplasticity research for CVI. Follow them for great technical explanations of CVI, research, upcoming seminars, and informational webinars as they work to better understand the science of CVI.
– Start Seeing CVI
The Start Seeing CVI Facebook page is designed to educate and shed light on Cortical Visual Impairment. As the leading cause of visual impairment in children in the U.S., they are raising awareness with a great page of new treatment ideas, fun DIY tips, interesting research articles, and conference and e-learning registrations.
– Little Bear Sees
This is the Facebook page for the Little Bear Sees organization, a non-profit organization that was created to share all kinds of information on CVI education and treatment. They have developed several resources that help children afflicted with Cortical Visual Impairment. Their Facebook page is a great place for inspiration, product updates, news, articles, and tips.
– CVi Connect
CVi Connect has a new iPad application that follows Dr. Christine Roman-Lantzy’s approach and interventions by presenting customized activities for all CVI phases, collecting visual data using the iPad camera, and interpreting that data to continue a customized learning plan for children with CVI. The Facebook page for this new application offers quality CVI educational articles, innovative treatment ideas, inspirational discussion, and general updates about CVI.
– American Printing House for the Blind
The American Printing House for the Blind (APH) has been an advocate for the blind and visually impaired since 1858. In fact, APH is the world’s largest nonprofit organization creating educational and independent living products for people who are blind and visually impaired. APH provides specialized materials, products, and services needed for education and life, including valuable CVI related products and information.
– CVI phase III Community
CVI Phase III Community is a page dedicated to learning specifically about Phase III of the CVI Range. They reach out to parents, families, educators, and professionals to further the understanding and commitment to Cortical Visual Impairment. Their page is frequently updated with new aids, tips, and education pieces for children with CVI.
– Cortical Visual Impairment (CVI) Awareness
Cortical Visual Impairment (CVI) Awareness is a closed group that you have to request to join. Once accepted, you will find a terrific resource for families, friends, and educators to learn more about CVI. The page enables sharing information on products, DIY ideas, educational opportunities, as well as inspirational support.
– Thinking Outside the Lightbox
Thinking Outside the Lightbox is a Facebook page created as a place to share ideas and ask questions about CVI. It is a good forum for new parents that have just discovered their child has CVI, as well as parents and families that have already been working with a child with CVI. They are a great resource for ideas about vision therapy, toys and aids for CVI children. Additionally, they offer a place for general discussion.
There are always new and exciting pages and resources for CVI appearing on Facebook. As we work to discover advances and education on the science and treatment behind CVI, we encourage you to stay up to date on our blog by signing up for our newsletter.