CVI Facebook Resources

The Top 10 CVI Facebook Pages You Should be Following

For families and friends that know someone with Cortical Visual Impairment, CVI Facebook pages can be an invaluable resource. There are many companies and support groups that have created pages on which they share important information. Pages can range from simple DIY ideas for your child with CVI, to educational and instructional resources to treat the condition.

Here are our top 10 CVI pages to follow and why we think they are helpful.

 1. Cortical Visual Impairment (CVI) Awareness

Cortical Visual Impairment (CVI) Awareness is a closed group that you have to request to join. Once accepted, you will find a terrific resource for families, friends, and educators to learn more about CVI. The page enables sharing of  information on products, DIY ideas, educational opportunities, as well as inspirational support.

2. CVI Advocacy

CVI Advocacy was created by parents in response to the overwhelming need for advocacy, awareness and education of Cortical Visual Impairment (CVI).  The purpose of this group is to build a collective advocacy movement around Cortical Visual Impairment.

 3. CViConnect

CViConnect has a new iPad application that follows Dr. Christine Roman-Lantzy’s approach and interventions by presenting customized Activities for all CVI phases, collecting visual data using the iPad camera, and interpreting that data to continue a customized learning plan for children with CVI. The Facebook page for this new application offers quality CVI educational articles, innovative treatment ideas, inspirational discussion, and general updates about CVI.

4. CVI Neuroplasticity Research Group

The CVI Neuroplasticity Research Group is a page focused on neuroplasticity research for CVI. Follow them for great technical explanations of CVI, research, upcoming seminars, and informational webinars as they work to better understand the science of CVI.

5. CVI NOW– parent/family only group

As parents of children with CVI, you are not alone. This group is a safe place for you to connect, share, and get answers to your questions with confidence, supported by experts, and open to all.


The Pediatric Cortical Visual Impairment Society is committed to improving the lives of children with CVI, the #1 cause of visual impairment in kids.  The PCVI website is full of excellent resources.

7. See CVI, Speak AAC

A mom of a child with CVI created this group to link people together to address the needs of those children with CCN (complex communication needs) and CVI. This mom opens up to share her stories and solutions that worked for her daughter.

8. Seeing Sadie and CVI

The Seeing Sadie and CVI Facebook page focuses on seeing the individual for who they are.  Through inspiration, support, education, and instructional videos they work together to assist children with CVI reach their greatest potential. They also work hard to bring facts to the community regarding Cortical Vision Impairment.

9. Start Seeing CVI

The Start Seeing CVI Facebook page is designed to educate and shed light on Cortical Visual Impairment. As the leading cause of visual impairment in children in the U.S., they are raising awareness with a great page of new treatment ideas, fun DIY tips, interesting research articles, and conference and e-learning registrations.

10. TVI Discussing CVI

This private Facebook group, TVI Discussing CVI, provides a safe place for professionals working with children with Cortical Vision Impairment to openly ask questions and/or discuss current trends, evaluations, and strategies.

There are always new and exciting pages and resources for CVI appearing on Facebook. As we work to discover advances and education on the science and treatment behind CVI, we encourage you to stay up to date on our blog by signing up for our newsletter.

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